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  1. Evidence suggests that Patient-centred Medical Home (PCMH) model facilitates person-centred care and improves health-related quality of life for patients with chronic illness. This study aims to evaluate chang...

    Authors: James Rufus John, W. Kathy Tannous and Amanda Jones

    Citation: Health and Quality of Life Outcomes 2020 18:288

    Content type: Research

    Published on:

  2. The lack of culturally appropriate instruments to measure hope across cultural settings is a barrier to assessing and addressing the relationship between hope and health outcomes. The study aim was to adapt an...

    Authors: Angele Bienvenue Ishimwe, Julia Kaufman, Delphine Uwamahoro, Jonathan Taylor Wall, Kaye Herth, Emery Chang, Jean de Dieu Ngirabega and Wendy Leonard

    Citation: Health and Quality of Life Outcomes 2020 18:286

    Content type: Research

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  3. EQ-5D is generic measure of health-related quality of life. Studies using EQ-5D generate ordinal data that are interpreted as categories ordered by severity. New analytic approaches taking into account the ord...

    Authors: Abdelghafour Marfak, Ibtissam Youlyouz-Marfak, Youness El Achhab, Elmadani Saad, Chakib Nejjari, Abderraouf Hilali and Jack Turman Jr

    Citation: Health and Quality of Life Outcomes 2020 18:63

    Content type: Research

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  4. Studies on the effect of high-intensity interval training (HIT) compared with moderate intensity continuous training (MICT) on health-related quality of life (HRQoL) after heart transplantation (HTx) is scarce...

    Authors: Katrine Rolid, Arne K. Andreassen, Marianne Yardley, Einar Gude, Elisabeth Bjørkelund, Anne R. Authen, Ingelin Grov, Kjell I. Pettersen, Christian H. Dall, Kristjan Karason, Kaspar Broch, Lars Gullestad and Kari Nytrøen

    Citation: Health and Quality of Life Outcomes 2020 18:283

    Content type: Research

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  5. The purpose of this study was to identify differences in caregiver responses to Korean-language and English-language versions of the Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILD...

    Authors: Ki Hyuk Sung, Soon-Sun Kwon, Gyeong Hee Cho, Chin Youb Chung, Clarissa Encisa, Huroy Menal, Unni G. Narayanan and Moon Seok Park

    Citation: Health and Quality of Life Outcomes 2020 18:282

    Content type: Research

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  6. Experiencing parental stress is common among parents of children of all ages and is elevated in families characterized by stressors such as poverty, mental health problems, and developmental problems. The Pare...

    Authors: Tine Nielsen, Maiken Pontoppidan and Signe Boe Rayce

    Citation: Health and Quality of Life Outcomes 2020 18:281

    Content type: Research

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  7. The objectives of this study were to investigate the HRQoL of residents living in central urban areas (CUA) and developing neighborhoods (DN) areas of North-China and to examine the relationship between health...

    Authors: Hui Wu, Shengbo Han, Guicheng Zhang, Weidong Wu and Naijun Tang

    Citation: Health and Quality of Life Outcomes 2020 18:280

    Content type: Research

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  8. The aim of this work was to develop a mapping algorithm for estimating EuroQoL 5 Dimension (EQ-5D) utilities from responses to the Long-Term Conditions Questionnaire (LTCQ), thus increasing LTCQ’s potential as...

    Authors: Apostolos Tsiachristas, Caroline M. Potter, Stephen Rocks, Michele Peters, Maureen Cundell, Rupert McShane, Laurie Batchelder, Diane Fox, Julien E. Forder, Karen Jones, Felicity Waite, Daniel Freeman and Ray Fitzpatrick

    Citation: Health and Quality of Life Outcomes 2020 18:279

    Content type: Research

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  9. Assessment of health-related quality of life (HRQoL) are often measured as an important patient-reported outcome (PRO) in clinical studies. Pulmonary arterial hypertension (PAH) is a common complication of atr...

    Authors: Fera Hidayati, Putrika P. R. Gharini, Anggoro Budi Hartopo, Dyah Wulan Anggrahini and Lucia Kris Dinarti

    Citation: Health and Quality of Life Outcomes 2020 18:278

    Content type: Research

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  11. Personality traits are related with risk of hazardous alcohol use and alcohol dependence. The Substance Use Risk Profile Scale (SURPS) measures personality traits associated with addictive substance abuse. We ...

    Authors: Migle Kaminskaite, Aiste Pranckeviciene, Adomas Bunevicius, Jovita Janaviciute, Darius Jokubonis, Aistė Plioplyte, Inesa Lelyte, Liuda Sinkariova and Ramunas Jokubka

    Citation: Health and Quality of Life Outcomes 2020 18:276

    Content type: Research

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  12. The European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 is a widely used cancer-specific questionnaire assessing 15 domains of health-related quality of life (HRQoL). Our aim was to faci...

    Authors: Jens Lehmann, Johannes M. Giesinger, Sandra Nolte, Monika Sztankay, Lisa M. Wintner, Gregor Liegl, Matthias Rose and Bernhard Holzner

    Citation: Health and Quality of Life Outcomes 2020 18:275

    Content type: Research

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  13. Reproductive concerns are common among young cancer survivors and include worries related to different aspects of fertility and parenthood. The Reproductive Concerns After Cancer (RCAC) scale is an 18-item sca...

    Authors: Poorna Anandavadivelan, Maria Wiklander, Lars E. Eriksson, Lena Wettergren and Claudia Lampic

    Citation: Health and Quality of Life Outcomes 2020 18:273

    Content type: Short report

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  14. The Tinnitus Functional Index (TFI) is a new diagnostic measure of the functional impact of tinnitus that is also a sensitive measure of treatment-related changes. However, the TFI has not been translated into...

    Authors: Xianren Wang, Ruyan Zeng, Huiwen Zhuang, Qiyang Sun, Zijun Yang, Cangjian Sun and Guanxia Xiong

    Citation: Health and Quality of Life Outcomes 2020 18:272

    Content type: Research

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  15. Breaking bad news (BBN) may be associated with increasing risk of burnout in practising physicians. However, there is little research on the association between the way bad news is broken and burnout. We inves...

    Authors: Andrea Messerotti, Federico Banchelli, Silvia Ferrari, Emiliano Barbieri, Francesca Bettelli, Elena Bandieri, Davide Giusti, Hillary Catellani, Eleonora Borelli, Elisabetta Colaci, Valeria Pioli, Monica Morselli, Fabio Forghieri, Gian Maria Galeazzi, Roberto Marasca, Sarah Bigi…

    Citation: Health and Quality of Life Outcomes 2020 18:271

    Content type: Research

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  16. Retroperitoneal sarcoma represents 15% of sarcomas. The mainstay of treatment is surgery where a majority of patients require multi-visceral resections that may significantly impact their quality of life (QOL)...

    Authors: Hui Jun Lim, Chin-Ann Johnny Ong, Thakshayeni Skanthakumar, Lisa Yuen Hong Mak, Seettha Devi Wasudevan, Joey Wee-Shan Tan, Claramae Shulyn Chia, Grace Hwei Ching Tan and Melissa Ching Ching Teo

    Citation: Health and Quality of Life Outcomes 2020 18:270

    Content type: Research

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  17. An amendment to this paper has been published and can be accessed via the original article.

    Authors: Ali Nurnazahiah, Mohd Razif Shahril, Zakarai Nor Syamimi, Aryati Ahmad, Suhaina Sulaiman and Pei Lin Lua

    Citation: Health and Quality of Life Outcomes 2020 18:259

    Content type: Correction

    Published on:

    The original article was published in Health and Quality of Life Outcomes 2020 18:222

  18. The original version of Victorian Institute of Sport Assessment-Patella Questionnaire (VISA-P) is developed in English, and aimed to assess the severity of patellar tendinopathy symptoms. Before used in China,...

    Authors: Weizong Weng, Xin Zhi, Zhenyu Jia, Shanshan Liu, Jianming Huang, Fang Wan, Jia He, Shiyi Chen and Jin Cui

    Citation: Health and Quality of Life Outcomes 2020 18:269

    Content type: Research

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  19. The Dermatology Life Quality Index (DLQI) is the most commonly used instrument for clinical evaluation of the impact on health-related quality of life (HRQOL) in dermatological research protocols. The DLQI’s c...

    Authors: Marilia F. S. Jorge, Ticiane D. Sousa, Camila F. Pollo, Bianca S. R. Paiva, Mayra Ianhez, Juliana C. Boza, Silmara Meneguin, Juliano V. Schmitt, Daniel Holthausen Nunes, Joel C. Lastoria and Hélio A. Miot

    Citation: Health and Quality of Life Outcomes 2020 18:268

    Content type: Research

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  20. Preference-based Health-Related Quality of Life (HRQL) is one of the most important indicators for calculating QALY (Quality-Adjusted Life Years) in a cost-effectiveness analysis. This study aimed to collect d...

    Authors: Shinichi Noto, Osamu Takahashi, Takeshi Kimura, Kensuke Moriwaki and Katsunori Masuda

    Citation: Health and Quality of Life Outcomes 2020 18:267

    Content type: Research

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  21. The prevalence of diabetes mellitus (DM) among patients with chronic kidney disease (CKD) has been increasing in recent years in China. This study aimed to evaluate the association between DM and health-relate...

    Authors: Li Chen, Jinwei Wang, Xiaoyan Huang, Fang Wang, Wei Liang, Yan He, Yumei Liao, Luxia Zhang, Minghui Zhao and Zuying Xiong

    Citation: Health and Quality of Life Outcomes 2020 18:266

    Content type: Research

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  22. Individuals with diabetes mellitus have difficulty solving problems in meaningful occupations and have similar difficulties with self-care regimens. We examined the effects of an occupation-based intervention ...

    Authors: Zeynep Bahadır Ağce and Gamze Ekici

    Citation: Health and Quality of Life Outcomes 2020 18:265

    Content type: Research

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  23. Several reports have demonstrated varying results on the quality of life (QoL) of the transgender population. Therefore, the aim of this study was to conduct a systematic review and meta-analysis about the qua...

    Authors: Mehrdad Eftekhar Ardebili, Leila Janani, Zaher Khazaei, Yousef Moradi and Hamid Reza Baradaran

    Citation: Health and Quality of Life Outcomes 2020 18:264

    Content type: Review

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  24. Duchenne muscular dystrophy (DMD) is an inherited X-linked neuromuscular disorder. A number of questionnaires are available to assess quality of life in DMD, but there are concerns about their validity. This s...

    Authors: Philip A. Powell, Jill Carlton, Helen Buckley Woods and Paolo Mazzone

    Citation: Health and Quality of Life Outcomes 2020 18:263

    Content type: Review

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  25. Empirical identification of the direct impact of hospitalisation in the change in utility could provide an interpretation for some of the unexplained variance in quality of life responses in clinical practice ...

    Authors: Fernando Albuquerque de Almeida, Maiwenn J. Al, Ron Koymans, Jarno Riistama, Steffen Pauws and Johan L. Severens

    Citation: Health and Quality of Life Outcomes 2020 18:262

    Content type: Research

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  26. Caring for patients with chronic disorders can lead to different problems for caregivers in physical, psychological, social, family, and financial domains. High levels of burden of care can make caregivers vul...

    Authors: Hayedeh Rezaei, Seyed Hassan Niksima and Reza Ghanei Gheshlagh

    Citation: Health and Quality of Life Outcomes 2020 18:261

    Content type: Research

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  27. Psychological flexibility is considered a fundamental aspect of health. It includes six interrelated facets: 1) cognitive defusion, 2) acceptance, 3) contact with the present moment, 4) self-as-context, 5) val...

    Authors: Yannik Terhorst, Harald Baumeister, Lance M. McCracken and Jiaxi Lin

    Citation: Health and Quality of Life Outcomes 2020 18:260

    Content type: Research

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  28. This study investigates the health-related quality of life (HRQOL) of female patients with congenital adrenal hyperplasia (CAH) in Malaysia. The objectives were to attain socio-demographic and medical data on ...

    Authors: Ani Amelia Zainuddin, Sonia Regina Grover, Nur Azurah Abdul Ghani, Loo Ling Wu, Rahmah Rasat, Mohd. Rizal Abdul Manaf, Khadijah Shamsuddin and Zaleha Abdullah Mahdy

    Citation: Health and Quality of Life Outcomes 2020 18:258

    Content type: Research

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  29. Perceived dental health has shown to have a significant predictive effect on overall health perception and life satisfaction. Thus, it seems plausible that Health Related Quality of Life (HRQOL) measures are a...

    Authors: Reshu Agrawal Sagtani, Sunaina Thapa and Alok Sagtani

    Citation: Health and Quality of Life Outcomes 2020 18:257

    Content type: Research

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  30. Patient-reported outcome measures are essential in the evaluation of facial palsy. Aim of this study was to translate and validate the Facial Disability Index (FDI) for use in the Netherlands.

    Authors: Martinus M. van Veen, Tessa E. Bruins, Madina Artan, Tanja Mooibroek-Leeuwerke, Carien H. G. Beurskens, Paul M. N. Werker and Pieter U. Dijkstra

    Citation: Health and Quality of Life Outcomes 2020 18:256

    Content type: Short report

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  31. It is essential to better understand the caregiving burden and its determinants to support caregivers. The aim of this study was to test the validity and reliability (internal consistency) of the caregiver bur...

    Authors: Akram Shafiezadeh, Majideh Heravi-Karimooi, Amin Mirzaee, Nahid Rejeh, Hamid Sharif Nia, Razieh Bandari and Ali Montazeri

    Citation: Health and Quality of Life Outcomes 2020 18:255

    Content type: Research

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  32. Cardiovascular diseases (CVDs) have been the global health problems that cause a substantial burden for the patients and the society. Assessing the Quality of Life (QOL) of CVD patients is critical in the effe...

    Authors: Bach Xuan Tran, Son Nghiem, Clifford Afoakwah, Giang Hai Ha, Linh Phuong Doan, Thao Phuong Nguyen, Tuan Thanh Le, Carl A. Latkin, Cyrus S. H. Ho and Roger C. M. Ho

    Citation: Health and Quality of Life Outcomes 2020 18:254

    Content type: Research

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  33. The role of artisanal and small-scale gold mining (ASGM) as a source of income is rapidly gaining importance in the economically difficult times in Zimbabwe. Besides limited epidemiological data, no data about...

    Authors: Jana Becker, Stephan Bose-O’Reilly, Dennis Shoko, Josephine Singo and Nadine Steckling-Muschack

    Citation: Health and Quality of Life Outcomes 2020 18:253

    Content type: Research

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  34. Listening to “patient voices” in terms of symptoms, emotional status and experiences with care, is crucial for patient empowerment in clinical practice. Despite convincing evidence that routine patient reporte...

    Authors: Cinzia Brunelli, Claudia Borreani, Augusto Caraceni, Anna Roli, Marco Bellazzi, Linda Lombi, Emanuela Zito, Chiara Pellegrini, Pierangelo Spada, Stein Kaasa, Anna Maria Foschi and Giovanni Apolone

    Citation: Health and Quality of Life Outcomes 2020 18:252

    Content type: Study protocol

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  35. Identify the most recent utility value estimates for cardiovascular disease (CVD) via systematic literature review (SLR) and explore trends in utility elicitation methods in the last 6 years.

    Authors: Marissa Blieden Betts, Pratik Rane, Evelien Bergrath, Madhura Chitnis, Mohit Kumar Bhutani, Claudia Gulea, Yi Qian and Guillermo Villa

    Citation: Health and Quality of Life Outcomes 2020 18:251

    Content type: Review

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  36. We aimed to compare the perception of health-related quality of life (HRQOL) and related factors in Spanish coeliac children and their parents, using two questionnaires, the generic KIDSCREEN-52 and the specif...

    Authors: Josefa Barrio, Maria Luz Cilleruelo, Enriqueta Román and Cristina Fernández

    Citation: Health and Quality of Life Outcomes 2020 18:250

    Content type: Research

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  37. Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dem...

    Authors: Chris Clarke, Bob Woods, Esme Moniz-Cook, Gail Mountain, Laila Øksnebjerg, Rabih Chattat, Ana Diaz, Dianne Gove, Myrra Vernooij-Dassen and Emma Wolverson

    Citation: Health and Quality of Life Outcomes 2020 18:249

    Content type: Review

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  38. Oral cancer surgery can have a deep effect on the quality of life in the patient both in terms of functional and psychological aspects. This study aimed to translate and validate the European Organization for ...

    Authors: Mahammad M. Davudov, Chingiz Rahimov, Iraj Harirchi, Zoheir Mirzajani, Namig Amiraliyev, Kanan Amiraliyev, Narmin Rustamova, Jayran Zebardast and Ali Montazeri

    Citation: Health and Quality of Life Outcomes 2020 18:248

    Content type: Research

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  39. The English version of the Chedoke Arm and Hand Activity Inventory is a validated, upper-limb measure with the purpose of assessing functional recovery of the arm and hand after a stroke. A German translation ...

    Authors: Frank Behrendt, Julia Charlotte Rizza, Fabian Blum, Zorica Suica and Corina Schuster-Amft

    Citation: Health and Quality of Life Outcomes 2020 18:247

    Content type: Research

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  40. The aim of this study was to evaluate the psychometric properties of the Functional Assessment of Cancer Therapy/Gynecologic Oncology Group—Neurotoxicity (FACT/GOG-Ntx) subscale in a longitudinal study of canc...

    Authors: Hui Lin Cheng, Violeta Lopez, Simon Ching Lam, Anthony Kwun To Leung, Yu Chung Li, Kam Hung Wong, Joseph Siu Kie Au, Raghav Sundar, Alexandre Chan, Terrence Rong De Ng, Lorna Kwai Ping Suen, Choi Wan Chan, Janelle Yorke and Alex Molassiotis

    Citation: Health and Quality of Life Outcomes 2020 18:246

    Content type: Research

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  41. Literature on the validity of outcome measurement in lymphedema and lipedema is very sparse. This study aimed to examine the convergent, divergent and discriminant validity of a set of 5 instruments in both co...

    Authors: Felix Angst, Susanne Lehmann, André Aeschlimann, Peter S. Sandòr and Stephan Wagner

    Citation: Health and Quality of Life Outcomes 2020 18:245

    Content type: Research

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  42. To develop a Korsakoff-specific measure of quality of life (QoL), to be rated by professional caregivers, and to field-test its psychometric properties in a sample of patients with Korsakoff’s syndrome (KS) li...

    Authors: Peter M. ten Klooster, Yvonne C. M. Rensen, Jorrit F. Postma and Roy P. C. Kessels

    Citation: Health and Quality of Life Outcomes 2020 18:244

    Content type: Research

    Published on:

  43. Neuromuscular disorders (NMDs) are chronic illnesses that adversely impact the lives of patients and their families. The Pediatric Quality of Life™ 3.0 Neuromuscular Module (PedsQL™ 3.0 NMM) was designed to as...

    Authors: Apirada Thongsing, Yanin Suksangkarn and Oranee Sanmaneechai

    Citation: Health and Quality of Life Outcomes 2020 18:243

    Content type: Research

    Published on:

  44. It is not well clear how psychosocial factors like depressive symptoms, social support affect quality of life in rural elderly in China. This study aimed to investigate the mediating role of depressive symptom...

    Authors: Jiayu Wang, Jiang Xue, Yuxing Jiang, Tingfei Zhu and Shulin Chen

    Citation: Health and Quality of Life Outcomes 2020 18:242

    Content type: Research

    Published on:

  45. With a shift in the healthcare paradigm towards a more patient-centered approach, data on inflammatory bowel disease (IBD) needs to be further explored. This study aimed to determine patient perspectives on th...

    Authors: Xiaohan Yan, Yuqi Qiao, Jinglu Tong, Ren Mao, Jie Liang, Cuicui Lv, Yueying Chen, Yiyan Wang and Jun Shen

    Citation: Health and Quality of Life Outcomes 2020 18:241

    Content type: Research

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  46. Cost-effectiveness models require quality of life utilities calculated from generic preference-based questionnaires, such as EQ-5D. We evaluated the performance of available algorithms for QLQ-C30 conversion i...

    Authors: Mira D. Franken, Anne de Hond, Koen Degeling, Cornelis J. A. Punt, Miriam Koopman, Carin A. Uyl-de Groot, Matthijs M. Versteegh and Martijn G. H. van Oijen

    Citation: Health and Quality of Life Outcomes 2020 18:240

    Content type: Research

    Published on:

  47. Burden of stroke is rising due to the demographic and epidemiological transitions in Sri Lanka. Assessment of success of stroke-management requires tools to assess the quality of life (QOL) of stroke survivors...

    Authors: P.K.B. Mahesh, M.W. Gunathunga, S. Jayasinghe, S.M. Arnold and S.N. Liyanage

    Citation: Health and Quality of Life Outcomes 2020 18:239

    Content type: Research

    Published on:

  48. Persons identifying as Black, Chinese, or South Asian make up the largest minority groups in Canada. Individuals with chronic heart failure (CHF) from these groups experience a greater rate of re-hospitalizati...

    Authors: Jelena Surikova, Ada Payne, Karen-Lee Miller, Arian Ravaei and Robert P. Nolan

    Citation: Health and Quality of Life Outcomes 2020 18:238

    Content type: Research

    Published on:

  49. In early-stage Non-Small Cell Lung Cancer (NSCLC) patients, little is known about how to measure patient participation in Shared-Decision Making (SDM). We examined the psychometric properties and clinical acce...

    Authors: Cecilia Pompili, Patricia Holch, Zoe Rogers, Kate Absolom, Beverly Clayton, Kevin Franks, Hilary Bekker and Galina Velikova

    Citation: Health and Quality of Life Outcomes 2020 18:237

    Content type: Research

    Published on:

  50. End-stage kidney disease is highly prevalent worldwide. Currently, one of the most effective treatment modalities is dialysis therapy, which leads to serious side effects. Furthermore, psychiatric illnesses ar...

    Authors: Hiroko Kukihara, Niwako Yamawaki, Michiyo Ando, Midori Nishio, Hiromi Kimura and Yoshiko Tamura

    Citation: Health and Quality of Life Outcomes 2020 18:233

    Content type: Research

    Published on:

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Health and Quality of Life Outcomes

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